A Breathtaking Life

It’s not surprising that Denise Hitzeman is asked to be a motivational speaker throughout California. Her story is as inspiring as it gets.

Seven years ago, Denise was diagnosed with hereditary hemorrhagic telangiectasia (HHT), a vascular disorder that means her blood doesn’t carry enough oxygen. She had always been physically active. She was a dancer, followed a regular routine of cardio and weight training, and loved mountain and road biking. But something was wrong, and getting worse. “I never understood why I hated running,” she says, “why I was usually the one struggling during a workout.” Then she started passing out in gyms: “It’s funny how fast a club will release you from a one-year contract when you loose consciousness in their facility.” Less funny was the discovery that HHT was the reason.

Photo: Facchino Photography

Photo: Facchino Photography

Before long, Denise was on therapeutic oxygen 24/7, and many things we take for granted, like doing the laundry, were “workouts” for her. But she was determined not to let her disease define her life. With the help of pulmonary therapist Cathe Pleasant, who she describes as “my hero,” she began an intense training regime that, she says, “brought me back from barely being able to make my bed, or sing my children to sleep, to running the 10K Wharf to Wharf race.” Since then, she’s done another 10K race, three Bay Area Mermaid races, and a 25-mile bike race…all with heavy oxygen tanks strapped to her back, or in her panniers. “I am healthier today than I was before being diagnosed, physically and mentally.”

Denise credits her accomplishments more to others than to herself: to Cathe, to the friends and family who lined her first race to help switch out her tanks. “It takes a village to get me across the finish line. It was so amazing that so many people came together to help me realize my goal.”

It also takes a very special woman to work her workouts into a life that would put many of us down for the count. But, as Denise puts it, sharing her favorite quote, ““Life isn’t measured by the number of breaths you take, but by the moments that take your breath away.”

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Home: Scotts Valley, CA
Occupation: Full time mom. Motivational Speaker. Entrepreneur.
Education: BS from Cal Poly, San Luis Obispo
Partner: Scott, married for 13 years.
Children: Two wonderful (99.9% of the time) children Madeline 11, and Alexander 7.
Age: 42
Height: 5’6”
Weight: I stopped stepping on the scale years ago.
Sports, past and present: Dance (modern and jazz), diving, surfing, cycling and now running.
Athletic accomplishments: Ran Wharf to Wharf  twice: first while pushing two ten-pound oxygen tanks, then while carrying an oxygen tank on my back in a hydration back pack.
Little known fact about you: I’m shy… really.
Environmentally incorrect preference: I have the reusable bags from every store, but I usually forget them in the car when I go shopping.
Guilty pleasure: Pirate Booty
Greatest triumph: Last Saturday riding with my friends and family in the Bike for Breath ride and watching my daughter finish her 18 miles, dashing across the finish line with the biggest smile on her face!
Favorite thing to do when not working or working out: Watching classic old movies during “family movie night” with all four of us squished together on the couch and sharing a big tub of popcorn. And, for my quiet, alone time—gardening.
Weekly Workout Schedule: Tuesdays and Thursdays with my Better Breathers group at the Hospital, doing cardio and weight training. Then, I try one other day with my friends from the neighborhood, usually a walk along the beach or around the ‘hood’ while our children play in the park. Last, one day on the weekend with my family usually a hike in the park.
Moment of Inspiration: When my daughter was three years old and I was just put on oxygen 24/7, I was very depressed. As I’m crying, from the other room, my husband and I hear our daughter talking to the dog.  “C’mon Sam,” she said, “let’s go find mommy.” A  few seconds later Maddie enters our room with a huge smile, looks at the dog, and exclaims, “See Sam, I told you we would find her, all you have to do is follow the hose,” referring to the fifty-foot oxygen tube that wound through the house to me.  At that moment, I saw that I was no different from the mom Maddie had before. She didn’t see me any differently, so why should I?

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Learning Curve Moments

When’s the last time you tried something for the first time?

Earlier this year, I found myself wondering if, amidst the busyness of job, family, community and commitments, I had let my learning muscles go a little soft.  Perhaps I’d gotten too good at being pretty good, too comfortable in my well-worn competence.   But can I actually jump back onto the steep part of the learning curve?  Now, I think, is a good time to find out.  Will you join me?  Share your learning curve moments in the comments section below.

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Missy Park, Founder

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Your Sports Story

What’s your story?

Maybe you came to sport late.

You found it in the gym or the studio.

Maybe you discovered it early, on a court or a course.

Maybe it’s walking, maybe it’s running, maybe it’s dance or yoga or swimming or hiking. Maybe you found your sport when you saw your daughter transformed by that first athletic success and knew that your own transformation was out there waiting for you. Maybe you found it on your way to something else—a kid’s practice, a healthier life, a friend’s race. But no matter where each of our sports stories begins, we all end up at the same place, a place where we are becoming our own best selves.

Tell us your story!

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Founder, Missy Park 

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Drumroll Please and the Winners Are …

t9surfboard_collage_thWe were totally overwhelmed by the response to our surfboard contest! Thank you all for the truly wonderful entries and a special thanks to our friends at Carve Designs and Entropy Surfboards for providing the grand prize that inspired all of the stoke!

We received 1,465 entries (including one that was received via mail… and was LAMINATED!). We were overcome with inspiration and hope by the stories you told.  On more than one occasion, we wondered if we could somehow get more surfboards to give away – and believe us, if we could, we would.

In the end, we had to choose just three.  Here are our winners along with 5 honorable mentions with stories that we felt deserved to be shared with all of you.  We hope you are as touched and inspired by these folks as we are.

Aloha,
the folks at title nine

The Lucky Ladies

Prize Name Hometown
T9 Surfboard Lisa Pratt Ward Johnson City, TN
$100 Gift Card + Team T9 Membership Sandy Highland Klamath Falls, OR
Team T9 Membership Donna Blue Kingstowne, VA

Grand Prize Winner – Lisa Pratt Ward
I don’t deserve the surfboard, but my friend and the most amazing mother of 2, Taeryn, really does. She lives on the Oregon coast and loves to run, swim and surf. She always encourages her kids to play outside too (even though it rains a lot). Taeryn is the quintessential “Title 9” mom. Three months ago, Taeryn’s 5 year old daughter passed away from cancer. Through it all, Taeryn has been so brave, so positive, so strong. I know a surfboard won’t bring back her daughter, but it might give Taeryn a few moments of solace and peace.

Taeryn and Grand Prize Winner Lisa

Taeryn and Grand Prize Winner Lisa

2nd place runner-up – Sandy Highland
I love the ocean, especially the crashing of the waves and the smell of the salty air. I am a 60 year old grandmother of twelve, three of whom are teenage boys who surf and skim board all the time. I can’t keep up very well because all I have is an old foamy board, and I grub all the time, but I always try my best! My oldest grandson says I’m a “kook!” With a new title 9 board I could show them that I am a hip grandma and that they better watch out, Surfs up!!

3rd place runner-up – Donna Blue
I found the athlete in me — however, later in life. I was morbidly obese for most of my adult life — weighing in at 330 lbs. I even purchased a handicap adaptable condo in Alexandria, VA for it was just too difficult to walk up steps. One day I woke up and was 48 years old and I was depressed. I looked at what I had done to my body. I couldn’t blame anyone else — God and genetics blessed me with health and I was destroying what was given to me. My Mother was visitng (80 then — 92 now) and we had a long talk about life and aging. I felt inspired and I finally took ownership of my weight/health problem. The next day I started my very own improvement program and after two years I had lost 170 pounds. I exercised each and every day for one hour — no excuses and the results have been just overwhelming. While I never thought of myself of active or athletic and would have never guessed that I would enjoy sweating — the new me has proven to be quite the competitor. I am now 60 (just a few months away)


Some more of our top picks!

I want to win this surfboard for my sister Carrie, my hero. Carrie had an accident with a borrowed surf board that knocked out teeth and scared her face. My beautiful sister kept her spirits up and love for surfing even after many months of surgery and healing. I want Carrie, a teacher and the mother of three young children, to have her own board (not borrowed) to take time for herself in the waters of Hawaii where she lives. But knowing Carrie, she will also use the board to show her two daughters and son the joys of surfing.
– Jennifer Olsson

My wife would be a great candidate for the board. As a former lifeguard and occassional surfer, she traded in that lifestyle to be an “Uber-Mom.” As a home health care nurse and mother of two, she rarely thinks of herself. Our son, who is autistic has twice gone to a surf camp for autistic children, however, surfboard money, instead goes to therapists for our son. A surfboard would provide my wife with the opportunity to recapture her youth, and more importantly an opportunity for her to capture his attention.
-Jason Budd (husband)

Dear Title Nine Folks: A super cool surf board like this would be great for women, and girls who would not have an opportunity to ever experience the thrill of this board, the water, waves, wind, and the power of becoming body, mind and heart. I live on a Lake Michigan town, where surfing in alive and well. My work as a at-risk teacher, has led me to teach school during the school year and start a small women’s, and girls outdoor adventure business, in the summer months. The goal of the business is to reach women and children who want to go outside, but to help those who would not have oppurtunities to have outdoor adventure experiences. This board would help many ladies, and girls become conifdent about themselves, learn how to become with natural elements, and learn about problem solving skills!
– Laura Mitchell

Freedom, Strength, Beauty There was no girls team; I wanted to run. Dad wasn’t happy, “Girls play tennis, they don’t run.” The guys and coach said yes. We won the 1972-1973 state track meet, I was the only girl; then came Title 9. Thirty-eight years later I still compete but now beside thousands of strong, beautiful women who run, cycle, surf, box, lift, throw, vault, climb, and kick. There’s a granddaughter on the way, this “sweet ride” will be hers. A symbol that passes along the value of Title 9; the freedom to compete and be strong and beautiful.
– Mary Jane Tapen

18, a senior in high school counting down the 7 days I have left until I enter the world. A year ago in Rye Nh, I learned to surf as my Senior project/thesis. Up on the first wave and have fallen head over heels for the ocean, up at 5 am everyday of the summer since (only I don’t have my own board I bum one off friends) I live at the base of a Nh mountain where I snowboard in the winter, the only girl on the local shred team and love every moment of it. (not trying to play the sympathy card) but feburary,I was diagnosed with spinal fractures, as a result of spinal cancer. I can only describe it as heartbreak.Knowing this mite be my last summer of adventure, for the rest of my life, is a total buzz kill. I’m awaiting a spinal fusion surgery to keep me walking. I want to become an Environmental scientist,study abroad in Puerto Rico, Costa Rica and save green sea turtles. Cancer sucks,but the ocean is awesome. Its a beautiful thing to lay on a surf board of your own,name it and paddle though the rough to the calm together. I cant promise the board and I would make it to study abroad and save turtles, but the two of us would enjoy this summer and wouldn’t go a healthy day with out seeing the ocean.
– Kayla Parcells

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Surfboard Contest Results

Thanks to everyone (Kids & Husbands included) for the heart touching stories. We had no idea that so many of our t9 sistas had a die hard surfer trapped inside. We’ve read your entries – all 1,462 of them. It was quite the task to choose a winner but we did it. Come back on Monday to see the winners.

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